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Leicester Royal Infirmary (Children’s)

Chris’ Story

Chris & Marianne's Story

Chris and Mariannes story

A Journey of Hope and Healing

Music has the power to heal, comfort, and uplift, even in the most challenging moments of life. For Chris and his mum, Marianne, music became a lifeline during a long and difficult journey through illness, and its impact continues to resonate in their lives today.

Chris was diagnosed with Acute Lymphoblastic Leukaemia (ALL) at the age of 19. It was an overwhelming diagnosis for someone so young, and the path that lay ahead was anything but easy. But even through the darkest days of treatment, there was a spark of hope—Tuesdays. Every fortnight, OPUS Music CIC visited Chris on the ward at Leicester Children’s Hospital, bringing with them an opportunity to make music, to express emotions, and to escape the world of medical interventions, if only for a little while.

“OPUS were a truly wonderful support to Chris when on the Ward,” says Marianne. “Through his darkest days in treatment, Tuesdays were something to look forward to, and they really did make a difference to his mental health.”

Music became more than just a distraction for Chris. It was a source of joy and connection, a way to channel his creativity during a time when much of his life felt out of control. Every session was a collaborative experience, with Chris and Marianne making music together alongside the OPUS musicians. These moments were filled with laughter, creativity, and expression—things that can often feel out of reach in a hospital environment.

Even the hospital staff, witnessing the transformation music could bring, were keen to get involved. They would continue making music with Chris in OPUS’s absence, helping to maintain the sense of joy and connection beyond the sessions. Part of OPUS Music CIC’s mission is to enable more healthcare staff to incorporate music into their everyday care of patients—benefiting not just the patients and families but creating a calming and connected atmosphere for the staff, too.

“As you can see in the pictures, his face says it all,” Marianne adds.

Those pictures capture not just a young man in treatment, but a young man rediscovering joy and a sense of purpose, even amidst the toughest of challenges. For Chris, those music sessions weren’t just about surviving—they were about thriving.

Chris is now nearly three years in remission, but his journey with music didn’t stop when he left the hospital. The creativity he nurtured during his time in treatment continues to inspire him today. He has carried that musical spark into his life, exploring performance and music-making beyond the walls of the hospital.

“We first met Chris and Marianne at Leicester Children’s Hospital, and we were instantly struck by Chris’s enthusiasm and creativity. It was an honour to make music with him, and we are thrilled to see that his passion for creativity has flourished.” – Nick Cutts, CEO, OPUS Music CIC

Music, as we’ve seen in Chris’s story, doesn’t just heal in the moment. It plants a seed for something deeper—a long-lasting boost to health and well-being that continues to grow even after treatment ends. It strengthens the bond between families and offers a way to communicate and connect when words are not enough.

At OPUS Music CIC, we believe in the power of music to make a difference in the lives of young people and their families. Chris’s story is just one example of how music can help carry people through the most difficult times and continue to bring light, joy, and well-being long after.

We are proud to have been part of Chris’s journey, and we look forward to continuing to support more people, like Chris, on their path to healing and beyond.

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Chris and Mariannes story

Chris’ Story

Music has the power to heal, comfort, and uplift, even in the most challenging moments of life. For Chris and his mum, Marianne, music became a lifeline during a long and difficult journey through illness, and its impact continues to resonate in their lives today.

Read More
On 16th October 2024, we at OPUS Music CIC were thrilled to be part of Sherwood Forest Hospitals Foundation Trust's Celebrating Excellence Day. It was a wonderful opportunity to share our work on building a "musical hospital," bringing music into the heart of patient care. Our musicians performed live throughout the day, creating moments of connection and joy for staff and patients alike.

Celebrating Excellence with SFHFT

On 16th October 2024, we at OPUS Music CIC were thrilled to be part of Sherwood Forest Hospitals Foundation Trust’s Celebrating Excellence Day. It was a wonderful opportunity to share our work on building a “musical hospital,” bringing music into the heart of patient care. Our musicians performed live throughout the day, creating moments of connection and joy for staff and patients alike.

Read More

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Charity Single: This Won’t Last Long

We’re delighted to launch our new charity song ‘This Won’t Last Long’, a song of hope and strength for our friends and colleagues in the NHS.

It has been written, recorded and produced in isolation whilst staying at home to help protect, and in celebration of, our NHS.

We’re happy to offer a free download of this song at our Bandcamp page.

If you like what you hear, then please support the work of the amazing Hospital Charities in Leicester, Nottingham, Derby and Sherwood Forest Hospitals at our Justgiving page.

Thank you!

Music in Healthcare Settings Apprenticeships: 2015-2016

APPLICATIONS ARE NOW CLOSED
Many thanks for the many applications we received.
We look forward to announcing our new Apprentices for 2015/16 soon.

We are delighted to launch the second year of our Music in Healthcare Settings Apprenticeship programme.

From September 2015 to June/July 2016, we are offering four paid apprenticeships, exploring Music in Healthcare Settings practice alongside highly experienced OPUS Musicians and Trainers and supporting the development of new programmes of practice.

Click on the following links for more information:

Full Apprenticeship Programme Details (pdf)
Apprenticeship Timetable (pdf)
Application Form (word)
Application Form (pdf)

The deadline for applications is midday on Friday 5th June 2015 with interview/auditions to be held in Derby on Friday 12th June, Monday 15th June or Tuesday 16th June 2015.

** ADDITIONAL INTERVIEW DATES ADDED **

This programme is made possible with the support of public funding by the National Lottery through Arts Council England.

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Continued music-making residencies in children’s hospitals

We are delighted to be able to continue, and expand our existing relationships with Derbyshire, Leicester, Nottingham and Kings Mill Children’s Hospitals with support from Youth Music and from our local and hospital partners.

This support means that OPUS musicians will now visit each hospital on a weekly basis until April 2016, making music for and with the patients, their families and staff.

Our recent evaluation and documentation work has demonstrated the highly valued impacts of this practice; we are incredibly grateful for the support of all our partners in enabling this work to continue.

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Evaluation: OPUS in Children’s Hospitals

OPUS’ current music in hospitals programme, taking place in Derbyshire, Leicester, Nottingham and Kings Mill Children’s Hospitals, is coming to an end in March 2014. We hope to resume the practice in May 2014, funding permitting! As part of the current programme, OPUS engaged the services of Evaluation Consultant Dr Anneli Haake to evaluate the programme. Anneli has done a fantastic job, capturing evidence of the impacts of this practice and pulling this all together into academic and summary report documents, an A1 size academic poster (for display in hospitals) and the film (3 versions) previously shared here. View and/or download the files by clicking the images below, and please feel free to share! Huge thanks to Anneli for all her work on this project with us.

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Sunshine in My Heart Film: OPUS in Children’s Hospitals

We are delighted to share our film, made as part of the evaluation process of our current Music in Children’s Hospitals practice supported by Youth Music, Derbyshire Hospitals Charity, Nottingham Hospitals Charity, Leicester City Council and Nottinghamshire County Council. The film was captured at Nottingham and Leicester Children’s Hospitals by our fantastic external evaluator Dr Anneli Haake.

There are three versions of our film. The full film is 24 minutes long, but if you don’t have the time (please try to make time, we think it’s worth it!) there are 4 minute and 1 minute ‘tasters’. Please do get in touch and let us know your own reflections on our film..

Full film (24 minutes)

4 minute ‘taster’

1 minute ‘taster’

 

A Moving Musical Experience.

One visit to a Children’s Hospital in November 2013 we were passing through one ward on our way to work in another, or so we thought……we were spotted and invited into one young patient’s room by his Mum.

She already knew us and knew of our work, as we had met before when her older daughter had been in the same hospital previously. Recently, her young baby had been having difficulty in passing faecal matter over the last four days and as a result was constipated and unable to take in much milk when hungry. He was crying in Mum’s arms as she struggled to get him to drink 30 ml of milk, and then appeared in pain.

We entered the room and played a variety of suitable pieces from our repertoire. The doctors came by the room and went away again, encouraging us to stay as if to see what result might occur from our music…..we stayed about 15-20 mins. The baby calmed and Mum was able to lay him down for a rest. We left and went off to another ward where we worked for the rest of the morning.

On our way back through to break for lunch, we put our heads around the door of the room with Mum and baby. She reported that the little one had had a massive bowel movement, had taken some more milk, and had slept for the rest of the morning uninterrupted.

St George’s Day

 

We were working on a ward in Leicester Hospital on Tuesday 23rd April and played our way round to a corner room where the door was wide open. Inside there was a little baby all dressed in green pyjamas. When he saw us he looked quite anxious – Who were these People? What were they carrying with them? And what were they going to do?

 

I was reminded of the training we had recently been doing with musicians in healthcare, and the ethics we had discussed. I knew I wanted to provide some nice music for this young man to enhance his stay in hospital, but was very aware I did not want to alarm him. He was in a very vulnerable position, with assisted breathing equipment, in a seated position in bed, with no adult he knew nearby.

 

We decided to play Twinkle, with no eye contact, just letting the music reach out to him and then observed his reactions. The music became part of his environment and more normal to him. He appeared to relax and began to smile intermittently.

 

My intention was then to help him feel more comfortable with us being there and thereby allow him access to more music and to enjoy himself.

 

Slowly, but surely, the smiling became more frequent, movement increased with stretching, reaching, sitting up and leg extensions – dancing as much as he could. He started to tip his head back, mouth wide in a silent laughter and caught my eye with glee – as if teasing me. Eye contact now not a threat to him, we shared quite long gazes.

 

I left him apparently relaxed and smiling and his nurse came by and shared the moment with us. I was reminded of how important eye contact is at the right time and with the right intensity, and felt so glad I had my training to help me make this interaction successful for this little baby and indeed a lovely experience for both of us.

Day of Dance

Tuesday 29th Jan at Leicester Children’s Hospital, working with Sarah Steenson and Nick Cutts. We began work playing on Ward 12, progressed through to Ward 28 and finished the morning in Ward 14. A busy morning that finished quite late. The afternoon was productively spent only on Ward 10 for the whole time. I was very pleasantly surprised by the amount of movement to music on this particular day, all day long…..

 

A father joined us in our music, singing to his daughter in her wheelchair initially. She was smiling so much that her gas breathing mask kept slipping off. We played Twinkle Twinkle, and a few other songs, and then progressed to a gentle waltz with the suggestion that they might share some rocking movements together. Dad needed no encouragement from us really and for several minutes the two of them engaged in lovely eye contact and moved back and forth with the wheelchair rolling to and fro on the floor fullly engaged in a beatiful dance.

 

Over to another ward, and we met up with an enthusiastic mother and her autistic son. She spent quite a while talking to me about how she had worked with her son in his early youth to develop his tolerance to touch, and this was evident as they danced together to our music while we played a mixture of Polkas, Hornpipes and Schottisches in the waiting area and outside their private room.

 

Another ward led us to meet a family with a toddler sitting in a toy car. She listened to our playing and started to wiggle from side to side. Her dancing developed and became more exaggerated. Nick started to sing “I’m in a Dancing Mood” which enabled us to progress through the song, changing the lyrics to suite the occasion – “I’m in a Singing Mood” ….”Wiggling Mood” etc etc.

 

Just around the corner, we found a mother and little baby, seemingly with some learning difficulties, and across the other side of the room a young girl in a wheelchair with the most amazing stripey tights on! We played Twinkle Twinkle and the mother sang to her baby and held her in the closest hug in her arms, and began to dance. Those stripey tights also started moving in time to the music. We played the Mazurka de St Pierre and Off to California, and there was much movement to be seen and pleasure exchanged just by the sharing of those musical moments.

 

In the afternoon we met up with a male patient we had seen before the previous visit and shared some music on the guitar. We all had a similar experience today with the young man playing on Sarah’s guitar with her as we sang. Nick then approached with an improvised song and music in Em. The chord progression was predictable enough for me to join in with an improvised melody. The lyrics Nick created were all about the patient’s name and how the song was made specially for him. The patient beamed with joy and his upper body became energised enough to lean away from the pillow and move about in the bed to the music.

 

In all the days that I have worked in hospital so far, I don’t think I have ever noticed quite as much of a physical response by so many people on the same day. Just coincidence? Maybe it was the way we were playing this day – I cannot say. But I did go away thinking of the uplifting feeling that I know I get when I have been dancing – the positive hormones that are released when you share music and movement with another human being – and I felt very strongly that we had brought a pretty special cultural dimension to these people’s day in hospital.

 

 

 

 

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